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Dysautonomie - la maladie neurologique qui déconcerte les médecins

Syndrome de tachycardie Orthostatique Posturale (POTS)

Site des potsien(ne)s, patients atteints de POTS, syndrome de tachycardie posturale orthostatique

TABLE. Postural orthostatic tachycardia syndrome (POTS) resources
Name	Content	Web address
Dysautonomia International Dysautonomia Information Network (DINET) The Dysautonomia Youth Network of America (DYNA) MyHeart.net Rehabilitation institute of Chicago (RIC) Mayo Clinic Standing Up to POTS	Nonprofit founded in 2012 by patients, caregivers, physicians, and researchers dedicated to assisting people living with various forms of dysautonomia. Volunteer-run nonprofit organization that raises awareness of autonomic nervous system dysfunction and promotes dysautonomia education, support, and networking. Includes medical advisors. Nonprofit organization specifically dedicated to childhood-, adolescent-, and young adult-onset dysautonomia conditions. Physician group dedicated to providing information regarding common cardiac conditions. Adolescent POTS management program. Offers information and contacts for appointments in Arizona, Florida, and Minnesota. This booklet explains what it means to have autonomic dysfunction. Volunteer organization founded in 2014 that provides resources, education, and fundraising to support POTS research and programs.	http://www.dysautonomiainternational.org/ http://www.dinet.org http://www.dynainc.org/ http://www.myheart.net/pots-syndrome/ http://www.ric.org/conditions/chronic-pain/adolescent-pots-program/ http://www.mayoclinic.org/medical-professionals/clinical-updates/endocrinology/postural-orthostatic-tachycardia-syndrome-and-chronic-fatigue-in-adolescents https://www.med.uth.edu/pediatrics/files/2014/02/MAYO_Clinic_Teens_Dysautonomia_copy.pdf http://www.standinguptopots.org/